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Peripartum Cardiomyopathy (PPCM), also known as Postpartum Cardiomyopathy, is an uncommon form of heart failure that happens during the last month of pregnancy or up to five months after giving birth. Cardiomyopathy literally means heart muscle disease.
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Source: American Heart Association
It can be difficult to diagnose PPCM and typically it is a delayed diagnosis as many of the signs and symptoms are similar to that of normal changes to your body during pregnancy.
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Source: HerHeart
Having a baby should be one of the happiest times of a woman’s life but unfortunately for some women, the experience turns into a nightmare. Although most people are aware of haemorrhage causing death in pregnancy, few are aware of a condition where the heart enlarges and becomes unable to pump sufficient blood to support the body. This condition is known as Peripartum or Postpartum Cardiomyopathy (PPCM).
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Source: MyHeartSisters
People with Peripartum Cardiomyopathy, as well as supporters, carers, family & friends are welcome.
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Source: Cardiomyopathy UK
Cardiac diseases are the most common cause of death and complications during pregnancy in the United States and the developed world.1 Pregnancy is associated with a high level of physiological stress and associated altered hemodynamics, which can aggravate underlying cardiac disease or manifest new maladies in those who are otherwise compensated but have suboptimal baseline cardiovascular status.
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The PPCM Registry is an online research registry for Peripartum Cardiomyopathy (PPCM) survivors. They aim to prevent, treat and cure PPCM through education and research.
Their virtual registry allows patients to share their PPCM experiences and medical data. This collection of data will help promote further PPCM research.
For more education and resources on PPCM, you can follow them on Twitter here.