Additional Resources

In addition to the Patient and Caregiver tools and resources provided by HFSA, access the following resources for more information on heart failure topics.

Educational Heart Failure Resources:

The following organizations offer support to heart failure patients and their families:

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America Association of Heart Failure Nurses (AAHFN)  The AAHFN is a specialty organization dedicated to advancing nursing education, clinical practice and research to improve heart failure patient outcomes. Heart failure is our exclusive interest and passion. Our goal is to set the standards for heart failure nursing care.

American College of Cardiology (ACC)  The mission of the American College of Cardiology (ACC) is to transform cardiovascular care and improve heart health.

American Heart Association (AHA)  The American Heart Association is the nation’s oldest and largest voluntary organization dedicated to fighting heart disease and stroke. Founded by six cardiologists in 1924, our organization now includes more than 22.5 million volunteers and supporters. We fund innovative research, fight for stronger public health policies, and provide critical tools and information to save and improve lives. Our nationwide organization includes 156 local offices and more than 3,000 employees. We moved our national headquarters from New York to Dallas in 1975 to be more centrally located.

Caregiver Action Network:  CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

ClinicalTrials.GovClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details.

Heart Failure MattersA web site for patients with heart failure, their families and carers developed by the medical education agency Litmus in conjunction with with the Heart Failure Association of the European Cardiology Society (HFA of the ESC).

Heart Failure OnlineThis site it dedicated to the patient with heart failure. Patients and interested viewers alike will enjoy its simple explanation of complex concepts involved in heart failure.

Her Heart: Her Heart is a registered not for profit that raises awareness around the risk factors and symptoms of heart disease in women. It mounts important campaigns and provides practical resources and support for women to identify risk & make changes. It is also an advocacy body that is making a difference.

Mended HeartsMended Hearts is the largest peer-to-peer heart patient support network in the world providing education, support and hope to all types of heart patients and their families.

NeedyMeds: NeedyMeds, a national non-profit, achieves its mission by providing information on healthcare programs, offering direct assistance and facilitating programs.

Patient Access Network (PAN) FoundationThe PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to under-insured patients who are unable to afford the out-of-pocket expenses for their prescribed medication.

SecondsCount.org: SecondsCount.org is a public information website hosted by the Society of Cardiovascular Angiography and Interventions (SCAI) to expand awareness of cardiovascular health issues, from prevention to treatment and everything in between.

WomenHeart: The National Coalition for Women with Heart Disease:  WomenHeart is the only national, patient-centered organization dedicated to promoting women’s heart health through advocacy, community education and patient support.

Patient Assistance Programs:

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Fund Finder: FundFinder is a new web-based app designed to help you quickly learn when financial assistance is available for a life-threatening, chronic or rare disease at PAN and other charitable foundations.

HealthWell Foundation: HealthWell Foundation is a leading non-profit dedicated to improving access to care for America's underinsured. They provide financial assistance to help with prescription copays, health insurance premiums, deductibles and coinsurance, pediatric treatment costs, and travel costs.

NeedyMeds: Visit NeedyMeds for more information on Patient Assistance Programs (PAPs), which provide free or low-cost prescription medicine to low-come people who are uninsured or under-insured.

Patient Access Network (PAN) Foundation for Pan Foundation Patient Access Funds – For Medicare Patients being Treated for Heart Failure

The Patient Access Network (PAN) Foundation has launched a new patient assistance fund for Medicare patients being treated for heart failure. Qualifying patients will be eligible to receive up to $1,500 per year to help cover the out-of-pocket costs associated with their prescribed heart failure medications. To qualify, patients must:

  • Have Medicare insurance and it must cover the medication for which they seek assistance
  • Reside and receive treatment in the United States
  • Have a household income at or below 500% of the Federal Poverty Level (for example, $79,650 or less for a family of two).

Patients, or advocates and caregivers applying on their behalf, can apply for assistance using PAN’s online patient portal (www.panapply.org) or by calling 1-866-316-PANF (7263), 9 a.m. to 5 p.m. Eastern Standard Time, Monday through Friday.

To learn more about PAN’s heart failure program, please visit here.

The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided nearly $1 billion in financial assistance to approximately one half million patients, who would otherwise be unable to afford their medications.

SingleCareSingleCare is the second largest, well funded national prescription savings group with a mission to lower health care costs for all Americans.

Social Security Disability Benefits with Chronic Heart Failure

Helpful Links:

Disclaimer: The Heart Failure Society of America, Inc. is not responsible and may not be held liable for the accuracy or completeness of the content of any of the web sites links located on this page. HFSA is not engaged in providing medical or other professional services or advice. If medical advice or services are sought, the services of a competent medical doctor should be obtained. The HFSA in no way recommends that anyone make any change in medical care or treatment without first consulting a medical doctor regardless of any recommendations or information that may be found at any site on the internet.