Professional Societies & Organizations:
In addition to resources provide by HFSA, you may want to visit the following pages:
America Association of Heart Failure Nurses (AAHFN) The AAHFN is a specialty organization dedicated to advancing nursing education, clinical practice and research to improve heart failure patient outcomes. Heart failure is our exclusive interest and passion. Our goal is to set the standards for heart failure nursing care.
We unite the full spectrum of nurses and other health professionals interested in heart failure. We serve as the interface for sharing ideas, translating research findings into practice and setting priorities for the future. We welcome and value all professionals involved in heart failure care. We focus on patients across all environments of care from the hospital, to the clinic, to home.
American College of Cardiology (ACC) The mission of the American College of Cardiology (ACC) is to transform cardiovascular care and improve heart health.
American Heart Association (AHA) The American Heart Association is the nation’s oldest and largest voluntary organization dedicated to fighting heart disease and stroke. Founded by six cardiologists in 1924, our organization now includes more than 22.5 million volunteers and supporters. We fund innovative research, fight for stronger public health policies, and provide critical tools and information to save and improve lives. Our nationwide organization includes 156 local offices and more than 3,000 employees. We moved our national headquarters from New York to Dallas in 1975 to be more centrally located.
American Society of Nuclear Cardiology (ASNC) The American Society of Nuclear Cardiology is a professional medical society. The mission of ASNC is to foster optimal delivery of Nuclear Cardiology services through developing standards of professional education and training, establishing guidelines for the clinical performance of Nuclear Cardiology, and the promotion of Nuclear Cardiology research.
Association of Black Cardiologists, Inc. (ABC) The Association of Black Cardiologists serves as a focus to encourage industry, government and non-governmental organizations to support the training of minority physicians and cardiologists; sponsor projects that will meet the health care needs of minority patients; and provide quality continuing medical education and sensitivity training for physicians.
Canadian Cardiovascular Society (CCS) The mission of the Canadian Cardiovascular Society is to foster optimal cardiovascular health for Canadians.
DCM Foundation Founded in 2017, the DCM Foundation is a non-profit organization with a mission to provide hope and support to patients and families with Dilated Cardiomyopathy through research, advocacy, and education.
European Society of Cardiology The European Society of Cardiology (ESC) represents today 52,931 cardiology professionals across Europe and the Mediterranean. Its mission is to reduce the burden of cardiovascular disease in Europe. The ESC achieves this through a variety of scientific and educational activities including the coordination of clinical practice guidelines, education courses and initiatives, pan-European surveys on specific disease areas and the ESC Annual Congress, the largest medical meeting in Europe.
German Heart Foundation The German Heart Foundation is fighting cardiovascular disease. The more knowledge you have about cardiac disease, the better you will be able protect yourself from it. The German Heart Foundation informs, organises educational workshops and supports scientific research.
Heart Rhythm Society (HRS) Heart Rhythm Society is the international leader in science, education, and advocacy for cardiac arrhythmia professionals and patients, and the primary information resource on heart rhythm disorders.
Preventative Cardiovascular Nurses Association (PCNA) Our mission is to promote nurses as leaders in cardiovascular disease prevention and management across the lifespan.
Educational Heart Failure Resources:
The following organizations offer support to heart failure patients and their families:
Caregiver Action Network: CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.
ClinicalTrials.Gov: ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details.
Heart Failure Matters: A web site for patients with heart failure, their families and carers developed by the medical education agency Litmus in conjunction with with the Heart Failure Association of the European Cardiology Society (HFA of the ESC).
Heart Failure Online: This site it dedicated to the patient with heart failure. Patients and interested viewers alike will enjoy its simple explanation of complex concepts involved in heart failure.
Her Heart: Her Heart is a registered not for profit that raises awareness around the risk factors and symptoms of heart disease in women. It mounts important campaigns and provides practical resources and support for women to identify risk & make changes. It is also an advocacy body that is making a difference.
Mended Hearts: Mended Hearts is the largest peer-to-peer heart patient support network in the world providing education, support and hope to all types of heart patients and their families.
NeedyMeds: NeedyMeds, a national non-profit, achieves its mission by providing information on healthcare programs, offering direct assistance and facilitating programs.
Patient Access Network (PAN) Foundation: The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to under-insured patients who are unable to afford the out-of-pocket expenses for their prescribed medication.
SecondsCount.org: SecondsCount.org is a public information website hosted by the Society of Cardiovascular Angiography and Interventions (SCAI) to expand awareness of cardiovascular health issues, from prevention to treatment and everything in between.
WomenHeart: The National Coalition for Women with Heart Disease: WomenHeart is the only national, patient-centered organization dedicated to promoting women’s heart health through advocacy, community education and patient support.
Patient Assistance Programs / Opportunities:
Apply for Social Security Disability Benefits with Chronic Heart Failure
Apply to the Patient Access Network (PAN) Foundation for Pan Foundation Patient Access Funds – For Medicare Patients being Treated for Heart Failure
The Patient Access Network (PAN) Foundation has launched a new patient assistance fund for Medicare patients being treated for heart failure. Qualifying patients will be eligible to receive up to $1,500 per year to help cover the out-of-pocket costs associated with their prescribed heart failure medications. To qualify, patients must:
- Have Medicare insurance and it must cover the medication for which they seek assistance
- Reside and receive treatment in the United States
- Have a household income at or below 500% of the Federal Poverty Level (for example, $79,650 or less for a family of two).
Patients, or advocates and caregivers applying on their behalf, can apply for assistance using PAN’s online patient portal (www.panapply.org) or by calling 1-866-316-PANF (7263), 9 a.m. to 5 p.m. Eastern Standard Time, Monday through Friday.
To learn more about PAN’s heart failure program, please visit here.
The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided nearly $1 billion in financial assistance to approximately one half million patients, who would otherwise be unable to afford their medications.
Fund Finder: FundFinder is a new web-based app designed to help you quickly learn when financial assistance is available for a life-threatening, chronic or rare disease at PAN and other charitable foundations.
NeedyMeds: Visit NeedyMeds for more information on Patient Assistance Programs (PAPs), which provide free or low-cost prescription medicine to low-come people who are uninsured or under-insured.
SingleCare: SingleCare is the second largest, well funded national prescription savings group with a mission to lower health care costs for all Americans.
Podcasts & Additional Resources:
Heart Failure Beat: Patient Series – Developed by HFSA, this podcast features interviews with patients, caregivers, and heart failure clinicians highlighting key things patients and caregivers need to know about living with heart failure.
CardioNerds – Each primary episode is staged around the consult interaction, to captivate both the cardiologist and non-cardiologist listener.
CMS Chronic Care Management Services Fact Sheet – Changes for 2019