HFSA is currently designing the HFSA Heart Failure Clinic Database, the only database capturing and storing details of the locations and services provided by heart failure clinics in the United States, using a standard definition for a “heart failure clinic.”
What is the HFSA Heart Failure Clinic Database?
The Heart Failure Clinic Database will be a secure, web-hosted resource designed to capture, verify, manage, and disseminate detailed information about heart failure clinics. This comprehensive database will capture data points such as clinic locations, services provided, staffing levels and education, procedures performed, and research activities.
What data will be collected and available?
The database will include details such as clinic locations, services, staffing levels, staff education/experience, procedures (e.g., heart transplants, left ventricular assist device surgery), and research activities. Data will be voluntarily self-reported by clinics across the U.S.
How will the HFSA Heart Failure Clinic Database be used?
The Heart Failure Clinic Database will offer heart failure professionals a hub for research collaboration, professional networking, and even seeking career opportunities and connections. It will allow patients to leverage publicly available information such as searching for a nearby clinic to seek treatment. Heart failure clinics would use the database to distinguish themselves from others for the benefit of patients, insurers, industry and prospective employees. Finally, industry will benefit by having access to key data and information that is not currently available in one easy-to-use location. With the Heart Failure Clinic Database, HFSA will set a new standard for data accessibility in heart failure treatment.
What is the anticipated launch date?
The HFSA Heart Failure Clinic Database began development in late 2024 and is anticipated to launch in mid-2025. HFSA members will be informed of the launch as the project nears finalization.
How can I make sure my clinic is in the database?
Currently, HFSA is capturing clinic information via the HFSA Clinic Database Survey.
When the database is launched, there will be an online data capture tool available for clinic administrators to provide data.
Support for the HFSA Heart Failure Clinic Database
The Heart Failure Clinic Database is being supported by Alnylam, Bayer, BridgeBio, Cytokinetics, and Daiichi Sankyo, organizations that share HFSA’s goals of being committed to serving the community and reducing the burden of heart failure.
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