New Online Database Will Provide Detailed Information on Heart Failure Clinics Across the United States
WASHINGTON, DC (NOVEMBER 11, 2024) — The Heart Failure Society of America (HFSA) is excited to announce the launch of the Heart Failure Clinic Database project, set to become the primary source of comprehensive information on heart failure clinics across the United States. This initiative aims to provide reliable and detailed data to healthcare providers, researchers, patients, device manufacturers, and pharmaceutical companies.
Providing a New Resource for Heart Failure Care
With a completion target of mid-2025, the Heart Failure Clinic Database will be a secure, web-hosted resource designed to capture, verify, manage, and disseminate detailed information about heart failure clinics. This comprehensive database will capture data points such as clinic locations, services provided, staffing levels and education, procedures performed, and research activities.
"The Heart Failure Clinic Database is an exciting new initiative that will fill a need for reliable and detailed information on heart failure clinics," said Richard Soucier, MD, Chair, HFSA Clinic Committee. "By creating this database, we aim to empower healthcare providers and patients alike with the information needed to make informed decisions and improve heart failure care nationwide."
Features and Benefits of the Heart Failure Clinic Database
There is currently no organization that maintains a database of the location and services of heart failure clinics in the United States utilizing a standard definition for a heart failure clinic. HFSA aims to be the source of record for heart failure clinics by compiling, managing, and verifying comprehensive information on heart failure clinics throughout the US. The database will include details such as clinic locations, services, staffing levels, staff education/experience, procedures (e.g., heart transplants, left ventricular assist device surgery), and research activities. The aim is to create a secure, web-hosted relational database that allows for easy data capture, import, and reporting capabilities.
The Heart Failure Clinic Database will offer heart failure professionals a hub for research collaboration, professional networking, and even seeking career opportunities and connections. It will allow patients to leverage publicly available information such as searching for a nearby clinic to seek treatment. Heart failure clinics would use the database to distinguish themselves from others for the benefit of patients, insurers, industry and prospective employees. Finally, industry will benefit by having access to key data and information that is not currently available in one easy-to-use location. With the Heart Failure Clinic Database, HFSA will set a new standard for data accessibility in heart failure treatment.
Serving the Heart Failure Community
The HFSA Heart Failure Clinic Database is intended to serve various stakeholders, including healthcare providers, researchers, patients, device manufacturers, and pharmaceutical companies. The database will promote cooperation among healthcare providers and industry partners, facilitate research collaboration, and empower patients with valuable insights for better treatment decisions by providing access to detailed information about heart failure clinics.
The Heart Failure Clinic Database is being supported by Alnylam, Bayer, BridgeBio, Cytokinetics, and Daiichi Sankyo, organizations that share HFSA’s goals of being committed to serving the community and reducing the burden of heart failure.
Looking Ahead
With the launch of this database, HFSA is committed to improving heart failure care by offering a centralized, easily accessible resource for information on heart failure clinics. The organization looks forward to the collaboration and contributions from the heart failure community to secure the database's ongoing success and relevance.
For more information and to stay updated on the development of the Heart Failure Clinic Database, visit www.hfsa.org.