I have HFpEF stage 3 and kidney failure stage 4. Because there are currently limited treatment options for HFpEF I regularly participate in clinical trials. Additionally, I have other significant comorbidities including glaucoma, dry amd, multiple arthritises, peripheral neuropathy, am a survivor of renal cell carcinoma and breast cancer and live with chronic pain. Procedures I have undergone include but are not limited to multiple joint replacements, multiple trabeculectomies, right nephrectomy, breast lumpectomy and radiation therapy. I am now in a clinical trial and have participated in 12 clinical trials including a pericardiotomy. My own extensive history of health issues gives me a deep understanding of the challenges patients face.

On a brighter level, I have a wonderful son, JaiPal, and two adorable dog companions, Trixie and Choti. I love gardening, painting and writing poetry.  In short, I am gifted with a rich, full life.

My experience as a support advocate and a research advocate at the local, regional, national and international levels is augmented by my professional experience as a social worker. I have been an active research advocate for twenty-four years and was an active support advocate for about fifteen years.