Andrea Gavin Headshot

Andrea Gavin


DSP Patient Advocate

Andrea was diagnosed with desmoplakin (DSP) genetic cardiomyopathy in 2021. While she had a family history of cardiomyopathy, she had never experienced a symptom and was diagnosed by chance, as opposed to systematic screening. Her experience has made her passionate about raising awareness around the need for familial screening and genetic testing to drive cardiomyopathy research and treatment, improve health outcomes, and save lives.  

Andrea works in global health communications and is a DCM Foundation board member, on the HFSA Heart Failure Certification Council, and a DSP patient advocate.